Thursday, 19 March 2015
When You Find Your First Dance Film...
In One Piece...
Wow! Tomorrow is Friday!
This week has flown, not that am surprised. Everyday I have been up between 6-6:30. If you know me, you will know M normally has to drag me out of bed, but i guess i always had a reason to stay in bed all warm and snug. So every morning this week I have got myself showered, hair and make up done then the fun came. two boys up and ready (with breakfast in them)before 8am to get II to my parents and then B to school... i can gladly say I've normally been out and up at parents by 8 with time for a cuppa with my parents before my busy day.
After I drop B at school I nip down the by pass on to the A19 and down the chester road, some days it hasn't been an enjoyable drive. Once at the hospital armed with magazines to keep M from going crazy and food so he doesn't starve I have a good few hours with him before nipping to town for lunch if going back or home for lunch and cuddles with the boys... In the afternoons i have been doing housework and getting things for M before getting back through Sunderland for 6pm visiting... 8pm comes and I wizz home to B asleep and II on the way. I do not know how I would of managed with out my parents this week, once they head home i grab a bite to eat and sort things for the next day.
So much respect goes to single parents, I have found it hard making decisions alone and sorting the boys on my own. I think it boils down to doubting myself and relying on M to encourage my decision are right. I think I have grown in confidence this week so it has its plus points! But roll on M being home, without hospital visits it will make life easier.
So Friday M should come home, Infusion for four hours then obs for a few hours then I get to bring him home... I will be wrapping him in cotton wool and be making him rest.
But most of all I can not wait to see the boys faces when they see their daddy, their hero is home!
This week has flown, not that am surprised. Everyday I have been up between 6-6:30. If you know me, you will know M normally has to drag me out of bed, but i guess i always had a reason to stay in bed all warm and snug. So every morning this week I have got myself showered, hair and make up done then the fun came. two boys up and ready (with breakfast in them)before 8am to get II to my parents and then B to school... i can gladly say I've normally been out and up at parents by 8 with time for a cuppa with my parents before my busy day.
After I drop B at school I nip down the by pass on to the A19 and down the chester road, some days it hasn't been an enjoyable drive. Once at the hospital armed with magazines to keep M from going crazy and food so he doesn't starve I have a good few hours with him before nipping to town for lunch if going back or home for lunch and cuddles with the boys... In the afternoons i have been doing housework and getting things for M before getting back through Sunderland for 6pm visiting... 8pm comes and I wizz home to B asleep and II on the way. I do not know how I would of managed with out my parents this week, once they head home i grab a bite to eat and sort things for the next day.
So much respect goes to single parents, I have found it hard making decisions alone and sorting the boys on my own. I think it boils down to doubting myself and relying on M to encourage my decision are right. I think I have grown in confidence this week so it has its plus points! But roll on M being home, without hospital visits it will make life easier.
So Friday M should come home, Infusion for four hours then obs for a few hours then I get to bring him home... I will be wrapping him in cotton wool and be making him rest.
But most of all I can not wait to see the boys faces when they see their daddy, their hero is home!
Tuesday, 17 March 2015
Live Life Like You Mean It!
We are definitely the type of family that gets an idea and runs with it, We were always the type of family that lived life to the full and did things fast!
As many people know me and M knew each other a while. Then on a night out he kissed me and time stood still and changed forever... now that sounds romantic and very movie like but none the less so very true. We were engaged with in three months and had signed for buying a house together... It felt right! at five months M had decided he wanted children with me (at the bottom of the Eiffel tower!) and by the time we had been together just over a year i was pregnant. B came and we got married ... life didn't stop there as we went on to extend our house and when the extension was complete for a month we welcomed II into our family...
Yes things could of went wrong, but with a lot of work and dedication to each other our family works. We make sure we respect each other and serve each other.
Looking back on the past six years I can't believe we have fitted so much in.
Sitting in bed though tonight am so very grateful we have, two boys asleep (one cuddled into me), a life in the fast lane for sure but no regrets .
Talking to a friend about things and her saying it put life into perspective what Tribe Wardle is going through has hit something deep in side me. We were a young family living a normal, maybe quick and filled life. The morning M had his relapse, that has triggered his treatment this week, We woke up, got ready , I kissed M goodbye at the end of the road he went off on his bike and i walked B to school... We did not want this to happen , these things happen to "other people", whom ever they are! but those "other people" that day just happened to be M/us.
So dear readers, Live life like you mean it, Don't put off until tomorrow and most of all LOVE, Love like you mean it and never go to bed on a cross word and without telling your loved ones you love and adore them.
All this is wrote from a person who cant turn over in bed and cuddled up to her husband and say "I Love you," before turning their light off for the night like I normally do, Roll on Friday to get M back home.
As many people know me and M knew each other a while. Then on a night out he kissed me and time stood still and changed forever... now that sounds romantic and very movie like but none the less so very true. We were engaged with in three months and had signed for buying a house together... It felt right! at five months M had decided he wanted children with me (at the bottom of the Eiffel tower!) and by the time we had been together just over a year i was pregnant. B came and we got married ... life didn't stop there as we went on to extend our house and when the extension was complete for a month we welcomed II into our family...
Yes things could of went wrong, but with a lot of work and dedication to each other our family works. We make sure we respect each other and serve each other.
Looking back on the past six years I can't believe we have fitted so much in.
Sitting in bed though tonight am so very grateful we have, two boys asleep (one cuddled into me), a life in the fast lane for sure but no regrets .
Talking to a friend about things and her saying it put life into perspective what Tribe Wardle is going through has hit something deep in side me. We were a young family living a normal, maybe quick and filled life. The morning M had his relapse, that has triggered his treatment this week, We woke up, got ready , I kissed M goodbye at the end of the road he went off on his bike and i walked B to school... We did not want this to happen , these things happen to "other people", whom ever they are! but those "other people" that day just happened to be M/us.
So dear readers, Live life like you mean it, Don't put off until tomorrow and most of all LOVE, Love like you mean it and never go to bed on a cross word and without telling your loved ones you love and adore them.
All this is wrote from a person who cant turn over in bed and cuddled up to her husband and say "I Love you," before turning their light off for the night like I normally do, Roll on Friday to get M back home.
Tuesday, 10 March 2015
Things Happen For A Reason (Part One Bs Birthday)
Yesterday our eldest boy turned 4!
I don't know how but we are so very proud of the way he has turned out.
B was born on my Dads birthday and both of these guys are absolutely amazing!
This is going to be short and sweet a simple post of gratefulness and luckiness in equal measure, M should of been in hospital this week, He should of been admitted yesterday , yet some how there wasn't any bed for him to start the treatment... I have never been so grateful for it being put back a week , Yes it means an extra week of thinking it over but and it is a big BUT my boy , mine and Ms world didn't have to be with out his hero and his daddy on his birthday. We had a lovely family day full of Chinese food,cake and time with my parents on my dads birthday, the added bonus was our friend and B's Godmother popped by and it was lovely to see her.
I do believe in this bigger plan and people reading the blog will be sick of me banging on about it but I do believe things happen for the good , even if we don't see it at the time.
Here is a picture of B & My dads Birthday cake:
I don't know how but we are so very proud of the way he has turned out.
B was born on my Dads birthday and both of these guys are absolutely amazing!
This is going to be short and sweet a simple post of gratefulness and luckiness in equal measure, M should of been in hospital this week, He should of been admitted yesterday , yet some how there wasn't any bed for him to start the treatment... I have never been so grateful for it being put back a week , Yes it means an extra week of thinking it over but and it is a big BUT my boy , mine and Ms world didn't have to be with out his hero and his daddy on his birthday. We had a lovely family day full of Chinese food,cake and time with my parents on my dads birthday, the added bonus was our friend and B's Godmother popped by and it was lovely to see her.
I do believe in this bigger plan and people reading the blog will be sick of me banging on about it but I do believe things happen for the good , even if we don't see it at the time.
Here is a picture of B & My dads Birthday cake:
"I am 4 and Grandad is 5!" (quote from B)
Friday, 6 March 2015
Normality...
The last three weeks have been a blur of hospital appointments and dropping the boys off with my parents or B at school then driving to appointments or dropping M at work.
Today how ever was normal... I've craved for a "normal" day in so long.
These last three weeks have been a strict schedule, one in which we have had to stick to. Today how ever was a free day. Tribe Wardle has never ran to a timetable as much as we have in the last few weeks. It felt nice to be organised but the free spirited girl inside of me screamed out to be given a little free reign.
Today we have shopped, visited family, had some television time and cooked. It felt amazing!
During the last three weeks we have tried to keep things normal for the kids, but lets face it our lives possibly wont be "normal" again.
So here is my big question, I ask daily, How as a mother and a wife do i keep family life normal when our world we have known is falling apart?
I doubt I will ever know the answer to this and am sure many nights it will keep me awake.
A week on Monday M goes in for Lemtrada treatment. It's scary in the fact he will be patient number 4 But on the other hand exciting for what it declares to offer. The wife in me is desperate to find the answers of how to keep M up beat and positive, the mother in me is worried about a full week of the children at nighttime without M's support and how to keep the children happy without their Dad who is their world and hero.
It is so hard being a wife and a mother so I ask this of you Please keep Tribe Wardle in your Prayers and please send all good vibes this way. Please pray that I find the answers to do my family proud, when the biggest motivator our family has is receiving treatment. M isn't just a dad or husband he is all our best friend and the head of our family who we look daily to for guidance.
And finally please pray our family finds its new normal, which we find comfort in.
Tuesday, 3 March 2015
This Journey We Call Life...
So dear reader now that is all out about M and all of our nearest and dearest are aware, Please let me fill you in from my(C) side.
So it has been quiet on here as and as I've blogged about before we were, before Christmas, going through a lot with the miscarriages, As a couple we felt it was important to have it out there that it was happening and we were trying to find a solution. The wonderful consultant decided it was best I went on some tablets to sort my hormones out and it was all put down to two pregnancies close together and breast feeding for 14 months after last pregnancy knocking my hormones all to pot.
I started on the tablets and during this time we got the news my beautiful husband has MS.
We were told to live life as normal and they would do their all to help keep it that way.
So when M was struck with a relapse and it affected his walking, resulting in needing a walking stick to walk, it was decided he would have some treatment called Lemtrada.
So here is the nitty gritty of it all... M will have 5 days of Lemtrada which will need a hospital stay, A year later he will need the same but only 3 days worth. This should make the relapses subside, but we need to stop trying for more children as it is not safe to do so whilst on the treatment or for 4 months after the last treatment.
Everything is not on hold its a simple situation of we won't be trying for another child for the next 16 months. We aren't saying we will be in 16 months but we will see how our situation is going. At the moment though these last months have been painful. It's not every year you lose 3 babies and have a husband diagnosed with MS.
As a family we have stepped back a lot in life and regrouped. We are OK though and we will be OK.
We believe that our family is on a journey, an open ended road trip like journey, we take different paths and we may hit bumps, But the main thing is We as Tribe Wardle will not stop or give up, There is a bigger plan to life which we do not know what will happen but we do invite you to stay with us and keep reading our blog as we go through this journey called Life.
So it has been quiet on here as and as I've blogged about before we were, before Christmas, going through a lot with the miscarriages, As a couple we felt it was important to have it out there that it was happening and we were trying to find a solution. The wonderful consultant decided it was best I went on some tablets to sort my hormones out and it was all put down to two pregnancies close together and breast feeding for 14 months after last pregnancy knocking my hormones all to pot.
I started on the tablets and during this time we got the news my beautiful husband has MS.
We were told to live life as normal and they would do their all to help keep it that way.
So when M was struck with a relapse and it affected his walking, resulting in needing a walking stick to walk, it was decided he would have some treatment called Lemtrada.
So here is the nitty gritty of it all... M will have 5 days of Lemtrada which will need a hospital stay, A year later he will need the same but only 3 days worth. This should make the relapses subside, but we need to stop trying for more children as it is not safe to do so whilst on the treatment or for 4 months after the last treatment.
Everything is not on hold its a simple situation of we won't be trying for another child for the next 16 months. We aren't saying we will be in 16 months but we will see how our situation is going. At the moment though these last months have been painful. It's not every year you lose 3 babies and have a husband diagnosed with MS.
As a family we have stepped back a lot in life and regrouped. We are OK though and we will be OK.
We believe that our family is on a journey, an open ended road trip like journey, we take different paths and we may hit bumps, But the main thing is We as Tribe Wardle will not stop or give up, There is a bigger plan to life which we do not know what will happen but we do invite you to stay with us and keep reading our blog as we go through this journey called Life.
Friday, 27 February 2015
Off topic posts
I am going to be creating a side blog to document my progress (m writing here) through my diagnosis and treatment of multiple sclerosis. This blog will continue, but the side blog will be at ms journey
My hope is this will help other people in a similar situation and those close to them, giving hope and what I now hope will be a positive outcome to what started as a very scary and negative time.
Coming soon will be the story of my journey so far from obliviously symptom free (as far as I can tell) through diagnosis to where I am today, waiting to start disease modifying treatment in 2 weeks.
Ms is a disease with a very bad reputation, but bear in mind you only hear the extreme cases, people who have it deal with it and get on with life you will probably never hear about and will never know they have ms. Please follow and read this blog to get another viewpoint.
My hope is this will help other people in a similar situation and those close to them, giving hope and what I now hope will be a positive outcome to what started as a very scary and negative time.
Coming soon will be the story of my journey so far from obliviously symptom free (as far as I can tell) through diagnosis to where I am today, waiting to start disease modifying treatment in 2 weeks.
Ms is a disease with a very bad reputation, but bear in mind you only hear the extreme cases, people who have it deal with it and get on with life you will probably never hear about and will never know they have ms. Please follow and read this blog to get another viewpoint.
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